Kidney Support Network Inc is a volunteer-based not-for-profit organisation and registered charity, providing quality support to Queenslanders who are impacted by Chronic Kidney Disease (renal failure). This support includes assisting children who suffer from kidney disease and their parents and families, through our Childhood Kidney Support Network (CKSN) Program.
We are very proud of our uniqueness in Queensland by assisting and guiding people with Chronic Kidney Disease through their journeys of Dialysis and Kidney transplant.
We have been helping individuals, carers and families in Queensland since 1981 with our personalised support and strong connections to major Hospital Renal Units across Queensland. Our support extends to kidney patients in Northern NSW, attending Hospitals from Tweed Heads to Brisbane, and even to New Guinea.
Over those 35 years our team of dedicated volunteers, many of whom are kidney patients themselves, have assisted kidney transplant recipients, people undergoing frequent life saving kidney dialysis and people who have suffered end stage kidney failure. Many of our volunteers share their own journeys of kidney disease through our Peer Support Program; and as an organisation we provide links to resources, information and personalised support services.
As an Incorporated Association in Queensland, the Kidney Support Network (KSN) is governed by a Committee of Management, in accordance with the Queensland Associations Incorporation Act 1981, with the Committee elected annually by KSN Members.
KSN has fought off several recent challenges which threaten the continuation of this essential and unique community support organisation. Impacts have included loss of crucial Queensland Government Chronic Disease Support funding in 2013, as well as loss of significant metropolitan and regional Patient Transport funding. The Transport Funding enabled KSN to transfer kidney patients to and from hospital for essential dialysis sessions, three times per week. KSN had also embarked on an unsuccessful merger attempt in 2015, with another community organisation, aimed at achieving long term sustainability for KSN. Merger negotiations unfortunately ceased late in 2015.
A number of operational areas for KSN have needed to be rationalised since 2013 with the Committee analysing its structure, services and operational costs and, with the help of generous community donations, to remain viable for as long as possible .
In our beginnings, and, under the guidance of Frank Vig OAM (who was the founding President) and Sister Margaret Mary Rudkins, we were known as the Queensland Renal Association. Our small community and charitable organisation grew into a strong network working with major renal hospitals in Queensland and their staff, to provide services and support to kidney patients through our state-wide Team of Volunteers.
The new Management Committee is determined to move KSN forward despite the described setbacks and to continue supporting kidney patients and their families first envisioned in 1981.
The Childhood Kidney Support Network (CKSN), a branch of KSN, aims to enhance the lifestyle, health and well being of children, teenagers and young adults who have chronic kidney disease, their parents and families.
We provide support, resources and information, free Resource Library, Parent Support, Chat Forums, Ambassadors and Mentors Program, Activity Programs for children in the Haemodialysis Clinic and CKSN Kidney Kids Activities.
Families with a child living with, or recently diagnosed with a chronic kidney disease, and needing support from others who are going through similar experiences, can join our Childhood Kidney Support Network.
CKSN also provides comforting I’m an Awesome Kidney Kid teddy bears to kidney transplant and dialysis children.
At the Haemodialysis Unit at the Lady Cilento Children’s Hospital, activity Programs are designed to provide children who are undergoing Haemodialysis with some fun and laughter, and, an opportunity to be a little creative and keep their minds active. This is a welcome distraction from constant medical procedures and hospital admissions.
More Queenslanders with healthy kidneys; improved lifestyle for people with Kidney Disease
To provide quality support services for people impacted by Kidney Disease.
Kidney Support Network (KSN) Committee of Management for 2016 is:
President: Trevor Waldron
Secretary: Liz Hancock
Treasurer: Adriana Hewett
Vice President: Liza Williams
Bethel O’Keeffe: Aboriginal and Torres Strait Islander Support
Lyndal Clark: Childhood Kidney Support Network (deceased 2016)
General Manager: Peter Watling