Supporting Kidney Patients
The Kidney Support Network is a Volunteer-led provider of quality support services for people living with Kidney Disease and their families and carers.

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About KSN

kidney_mascot

Kidney Support Network Inc is a volunteer-based not-for-profit organisation and registered charity, providing quality support to Queenslanders who are impacted by Chronic Kidney Disease (renal failure). This support includes assisting children who suffer from kidney disease and their parents and families, through our Childhood Kidney Support Network (CKSN) Program. We are very proud of our uniqueness in Queensland by assisting and guiding people with Chronic Kidney Disease through their journeys of Dialysis and Kidney transplant. We have been helping individuals, carers and families in Queensland since 1981 with our personalised support and strong connections to major Hospital Renal Units across Queensland. […]

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Patient & Family Support

Kidney Support Network (KSN) understands the value of strong communities for those who are affected by kidney disease. As a result, one of the service strategies we have is to encourage the development of support services throughout Queensland.

Our support services are informal resources that provide social support and helpful spaces for people who are impacted by Kidney Disease. The aim is to give each other moral support, useful tips, hints and practical advice and share our kidney journeys.

Support Services

To find out about the current active support groups and support service-points please check the table, or email us at [email protected].

If there is no support group currently operating in your local area, why not start one! We are available to help you in any way needed to get your new group up and running and we will provide you with ongoing advice and support. Contact 1800 358 797 to find out more!

Volunteering with KSN – we are always looking for more volunteers to help our Support Groups to help kidney patients.

Type Location Contact Details
 Keperra Op Shop 1/10 Dallas Parade Keperra
Brisbane QLD 4054
Call 07 3855 9781. Free Call: 1800 358 797.
Email: [email protected]
Postal Address: PO Box 457 Redcliffe Qld 4020  Contact People
Lisa Harvey
Redcliffe and Northern Districts – Support Group PO Box 457 Redcliffe Qld 4020 Secretary
Liz Hancock – 0407 885 559 ([email protected])Supporter Contacts
Colin Wright – 3204 8666 ([email protected])
Tom Hunt – 3880 1172
Adriana Hewett – 0421 330 152 ([email protected])
Liz Hancock – 3889 4573, Mob 0407885559
Janice Cuss – 3885 0453
Sunshine Coast Branch Office and Currimundi Op Shop

 

Maroochydore Op Shop

 

1  Gannawarra Street
Currimundi QLD 4551Shop 2/44 Aerodrome Road
Maroochydore 4558
Call (07 5314 2013)    Branch Coordinator – Kathy Rayner     Email: [email protected]   

Mob: 0410 755 476

Call (07) 5443 3553.
Email: [email protected]    Branch Coordinator – Kathy Rayner

Email: [email protected]

Mob: 0410 755 476

Sarina Op Shop Shop A/24

Central Street

Sarina

4737

Call  :3614 4394
Email: [email protected] Shop Coordinator – Lisa Gaskell

Mob: 0468 096 5967

Mackay Branch and Op Shop

 

 

 

 

 

 

1/ 235 Shakespeare St
Mackay QLD 4740 

 

Call – 0477 169 148

Branch Manager
Bobbie Barker – 0423 964 397 (bobbie.barker@ksn.org.au)

Transport Coordinator
Trevor Porter – 0413 099 754

 

 

First Peoples and Multicultural Support

Aboriginal and Torres Strait Island intro1

Chronic Kidney Disease (CKD) is generally more prevalent in the Aboriginal and Torres Strait Islander (ATSI) population than in the non-indigenous population. The statistics are serious, with everyone of the ATSI community currently being ‘at risk’ of kidney disease, and the risk of having chronic kidney disease increases with age.  Currently within the ATSI community evidence suggests that 97% of those over 55 years old have reported as having at least one long-term health condition. However chronic kidney disease can potentially develop at any age. The most common cause of kidney disease for ATSI patients is diabetes (high blood sugar).

The ATSI population are at a higher risk of developing CKD due to various lifestyle choices and medical conditions. These include increasing age, low birth weight & infant malnutrition, adult weight gain, signs of syndrome X (increasing blood pressure, insulin, blood glucose, and lipid levels), skin infections, post-streptococcal glomerulonephritis, excessive intake of alcohol, repeated pregnancies, family history of CKD and smoking.

Mortality rate is also much higher among the ATSI population and statistics have indicated that the morality rate for ATSI women is three times higher than for ATSI men. High mortality is partly linked with the high rate of withdrawals from treatment by patients due to personal challenges. Some of the common challenges includes attending cultural duties, distance from treatment, not finding suitable housing, changing social circumstances and communication problems.

NAIDOC-DisplayKidney Support Network understands the impact kidney disease can have on patients and their families. Our services are designed to help patients overcome some of the challenges they may face. To better support the ATSI community we have developed services that can make their lives easier. These include:

  • Regular transport to and from the hospitals for dialysis;
  • Convenient accommodation for transplant patients;
  • Peer support for Indigenous patients;and
  • Information & resources that addresses the needs of the ATSI community.

The Kidney Support Network acknowledges the traditional owners of country, and their continuing connection to land, sea and community. We respect their cultures and elders, past and present.

Childhood KSN

cksnlogoThe Childhood Kidney Support Network (CKSN) aims to enhance the lifestyle, health and wellbeing of children and young adults who have Kidney Disease.  The CKSN also provides peer support for parents of Kidney Kids.

Having your child diagnosed with Kidney Disease can be a very isolating and frightening experience. Talking and sharing your experiences with others who also have a child with Kidney Disease can provide great support, reassurance and help ease the situation.

As well as our support programs and services, CKSN offers parents, children, teenagers and young adults a network of contacts who understand the ‘kidney journey’.

CKSN is run entirely by Volunteers and funds raised are used for our programs and services.

 

Parent Support

CKSN provides opportunities for parents and families to share their experiences relating to their child’s ‘kidney journey’, and offers support and advice on how to live a full and active life despite Kidney Disease.  We also have a visit program where a CKSN volunteer can visit parents and children, on request of the parents, while at Lady Cilento Children’s Hospital.

Kidney Kids Program

cksn-teddyOur Kidney Kids Program includes our ‘I’m an Awesome Kidney Kid!’ Teddy Bear and soft throw rugs and quilts for when children are having treatments in Hospital.  We also have an awesome Kidney Kids Christmas Party every year where every child receives a gift. These and other events are a welcome distraction from dialysis, constant hospital admissions, medications and doctors’ appointments.  It also reduces the isolation children, and parents, may feel when diagnosed with a chronic illness.  They are excited to be a part of the Kidney Kids family!

 

Resource Library

CKSNs’ Resource Library is a FREE service providing families access to a variety of books, brochures, booklets and information regarding Kidney Disease in children.

CKSN Facebook Group

Our active Parent Facebook group is a closed group.   The group is based on peer-support principles, where parents can share experiences, offer support, advice and ask questions.

 

Ambassadors and Mentors Program

Our Ambassadors and Mentors are young adults, teenagers and children who are eager and happy to connect and share their ‘Kidney Journey’ and experiences with others. Talking to others who are going through the same experiences can be a much needed opportunity to share stories and information, emotional issues and receive and provide support.

For more details please contact:

T: 0421 085 829
E: [email protected]
F: CKSN Facebook

Information & Resources

As part of our support services, Kidney Support Network (KSN) offers an information booklet about Kidney Disease, treatment options, and, tips on dealing with various health and lifestyle issues. These booklets are designed to give answers to some of the commonly asked questions. It is encouraged that you seek advice from your GP if there are specific issues that concern you. If you wish to receive a physical copy of the booklet, feel free to contact us on : 07 3855 9781. Below are the booklets provided by KSN.

  • Kidney facts for you: provides a general overview about Kidney Disease;
  • All About You – Chronic Kidney Disease: Outline risk factors and tips on maintaining your health; and
  • All About You – High Blood Pressure: Provides information especially for those with high blood pressure.

KSN also hold copies of booklets from other health organisation ranging from in depth information about specific Kidney issues to various health management tips and ideas. Some of the key booklets include:

  • Kidney Failure Options: Details the different treatments for patients with Kidney Failure;
  • Withdrawing from Dialysis Treatment: Provides answers to frequently asked question concerning treatment withdrawal;
  • Kidney Donation by live donors: For people thinking of becoming live kidney donors; and
  • Time to take some health measures?: Contains simple steps you can take to reduce your risk of Chronic disease and maintain a healthier life.

For information or resources, please contact [email protected] or call 07 3855 9781.

Kidney Donation by Live Donors

ki

IN THIS ISSUE:

Live kidney donation is a gift by choice and not by chance.

It is a gift of a normal functioning kidney from one living human being to another.

Live kidney donation is usually charged with lots of emotion. Giving an organ to enhance another persons life is a momentous event!

Download the brochure.

Polycystic Kidney Disease

poly

IN THIS ISSUE:

Polycystic Kidney Disease (PKD) is quite a common kidney disease in which cysts (fluid filled sacs) are formed in the kidneys.

PKD is a hereditary disease and hence a family disease. It affects both kidneys although one may be affected earlier than the other and/or more than the other.

Download the brochure.

Latest Renal Medical Research

implantable-artificial-kidneyImplantable Artificial Kidney

Nashville, Tennessee USA: Vanderbilt University Medical Center Nephrologist and Associate Professor of Medicine, Dr William H. Fissell IV, is making major progress on a first-of-its kind device to free kidney patients from dialysis.

He is building an Implantable Artificial Kidney with microchip filters and living kidney cells that will be powered by a patient’s own heart.

“We are creating a bio-hybrid device that can mimic a kidney to remove enough waste products, salt and water to keep a patient off dialysis,” said Fissell.

Dr Fissell says the goal is to make it small enough, roughly the size of a soda can, to be implanted inside a patient’s body.

To read more of this entire article, please visit the website: http://news.vanderbilt.edu/2016/02/vu-inside-dr-william-fissell%E2%80%99s-artificial-kidney/

New algorithm points the way towards regrowing organs and limbs

mogrifyAn international team of researchers has developed a new algorithm that could one day help scientists reprogram cells to plug any kind of gap in the human body.

The computer code model, called Mogrify, is designed to make the process of creating pluripotent stem cells much quicker and more straightforward than ever before.

A pluripotent stem cell is one that has the potential to become any type of specialised cell in the body: eye tissue, or a neural cell, or cells to build a heart. In theory, that would open up the potential for doctors to regrow limbs, make organs to order, and patch up the human body in all kinds of ways that aren’t currently possible.

To read this entire article, please visit the website: http://www.sciencealert.com/new-algorithm-points-the-way-towards-regrowing-limbs-and-organs/page-2

Medical Equipment

We are currently reviewing the Medical Equipment program.  Please contact us if you require a PD Belt.

Product Members Non-members
pdbelt PD Belt $14 (inc P&H) $20 ($3 P&H)

Inspiring Stories

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