Supporting Kidney Patients
The Kidney Support Network is a Volunteer-led provider of quality support services for people living with Kidney Disease and their families and carers.

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About KSN

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Kidney Support Network Inc. is a volunteer-based not-for-profit organisation and registered charity, providing quality support to Queenslanders who are impacted by Chronic Kidney Disease (renal failure). This support includes assisting children who suffer from kidney disease and their parents and families, through our Childhood Kidney Support Network Program. We are very proud of our uniqueness in Queensland by assisting and guiding people with Chronic Kidney Disease, through their journeys of Dialysis and kidney transplant. We have been helping individuals, carers and families in Queensland since 1981, with our personalised support and strong connections to major Hospital Renal Units across Queensland. […]

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Patient & Family Support

Kidney Support Network understands the value of strong communities for those who are affected by kidney disease. As a result, one of the service strategies we have is to encourage the development of support services throughout Queensland.

Our support services are informal resources that provide social support and helpful spaces for people who share a characteristic or experience, such as Kidney Disease. The aim is to give each other moral support, useful tips, hints and practical advice and relay personal stories.

Support Services

To find out about the current active support groups and support service-points please see the information in the table and map below, or email us at information@ksn.org.au.

If there is no support group currently running in your local area, why not start one! We are available to help you in any way needed to get your new group up and running and we will provide you with ongoing advice and support. Contact 1800 358 797 to find out more!

Type Location Contact Details
Head Office and Branch 10 Dallas Parade Keperra
Brisbane QLD 4054
Call 07 3855 9781. Free Call: 1800 358 797.
Email: information@ksn.org.au
Postal Address: PO Box 457 Redcliffe Qld 4020Contact People
Liz Hancock (Secretary) – 0407 885 559
Steve Kerslake (office) – 07 3855 9781
Redcliffe and Northern Districts – Support group Redcliffe Qld 4020 Secretary
Liz Hancock – 0407 885 559 (liz.hancock@ksn.org.au)Supporter Contacts
Colin Wright – 3204 8666 (information@ksn.org.au)
Tom Hunt – 3880 1172
Adriana Hewett – 0421 330 152 (adriana.hewett@ksn.org.au)
Liz Hancock – 3889 4573, Mob 0407885559
Janice Cuss – 3885 0453
Maroochydore Op Shop Shop 2/44 Aerodrome Rd
Maroochydore 4558
Call (07) 5443 3553.
Email: maroochyop@gmail.com
Currimundi Op Shop 1 Gannawarra Street
Currimundi QLD 4551
Call 07 5493 8394.
Email: maroochyop@ksn.org.au
Mackay Branch and Op Shop 235 Shakespeare St
Mackay QLD 4740
Call 07 4836 5074.

Branch Manager
Liza Williams – 0423 964 397 (liza.williams@ksn.org.au)

Transport Coordinator
Trevor Porter – 0413 099 754

First Peoples and Multicultural Support

Aboriginal and Torres Strait Island intro1

Chronic Kidney Disease (CKD) is generally more prevalent in the Aboriginal and Torres Strait Islander (ATSI) population than in the non-indigenous population. The statistics are serious, with everyone of the ATSI community currently being ‘at risk’ of kidney disease, and the risk of having chronic kidney disease increases with age.  Currently within the ATSI community evidence suggests that 97% of those over 55 years old have reported as having at least one long-term health condition. However chronic kidney disease can potentially develop at any age. The most common cause of kidney disease for ATSI patients is diabetes (high blood sugar).

The ATSI population are at a higher risk of developing CKD due to various lifestyle choices and medical conditions. These include increasing age, low birth weight & infant malnutrition, adult weight gain, signs of syndrome X (increasing blood pressure, insulin, blood glucose, and lipid levels), skin infections, post-streptococcal glomerulonephritis, excessive intake of alcohol, repeated pregnancies, family history of CKD and smoking.

Mortality rate is also much higher among the ATSI population and statistics have indicated that the morality rate for ATSI women is three times higher than for ATSI men. High mortality is partly linked with the high rate of withdrawals from treatment by patients due to personal challenges. Some of the common challenges includes attending cultural duties, distance from treatment, not finding suitable housing, changing social circumstances and communication problems.

NAIDOC-DisplayKidney Support Network understands the impact kidney disease can have on patients and their families. Our services are designed to help patients overcome some of the challenges they may face. To better support the ATSI community we have developed services that can make their lives easier. These include:

  • Regular transport to and from the hospitals for dialysis
  • Convenient accommodation for transplant patients
  • Peer support for Indigenous patients
  • Information’s & resources that addresses the needs of the ATSI community.

The Kidney Support Network acknowledges the traditional owners of country, and their continuing connection to land, sea and community. We respect their cultures and elders, past and present.

Childhood KSN

cksnlogoThe Childhood Kidney Support Network aims to enhance the lifestyle, health and wellbeing of children, teenagers and young adults who have Kidney Disease, and their parents, through our support programs and services.

Having your child diagnosed with Kidney Disease can be a very isolating and frightening experience. Talking and sharing your experiences with others who also have a child with Kidney Disease can provide great support, reassurance and help ease the situation.

As well as our support programs and services, CKSN offers parents, children, teenagers and young adults a network of contacts who understand the ‘kidney journey’.

CKSN is run entirely by Volunteers and funds raised are used for our programs and services.

CKSN Website

Our website includes details about our services and programs, pages of articles, resources and useful links. Visit: http://childhoodkidneysupportnetwork.org/

Parent Support

CKSN provides opportunities for parents and families to share their experiences relating to their child’s ‘kidney journey’, and offers support and advice on how to live a full and active life despite Kidney Disease.

Kidney Kids Program

cksn-teddyOur Kidney Kids Program includes our I’m an Awesome Kidney Kid! Teddy Bears, competitions, craft and entertainment activities for children undergoing Haemodialysis at the Lady Cilento Children’s Hospital; Balloons 4 Kidney Kids, soft throw rugs and quilts for Kidney Kids, events – all are a welcome distraction from dialysis, constant hospital admissions, medications and doctor’s appointments.

Resource Library

CKSN’s Resource Library is a FREE service providing families access to a variety of books, brochures, booklets and information regarding Kidney Disease in children.

Chat Forums

Our active Parent Facebook Community is where parents can share experiences, offer support and advice and ask questions. Our Kidney Chit Chat Facebook Community is for young adults and their siblings.

eAlerts

CKSN eAlerts keep parents up to date on our activities, informed on relevant resources and articles.

Ambassadors and Mentors Program

Our Ambassadors and Mentors are young adults, teenagers and children who are eager and happy to connect and share their ‘Kidney Journey’ and experiences with others. Talking to others who are going through the same experiences can be a much needed opportunity to share stories and information, emotional issues and receive and provide support.

For more details please contact:

T: 1800 358 797
E: parentsupport@ksn.org.au
W: http://childhoodkidneysupportnetwork.org/
F: CKSN Facebook

Information & Resources

As part of our support services, KSN offers an information booklet about Kidney Disease, treatment options and, tips on dealing with various health and lifestyle issues. These booklets are designed to give answers to some of the commonly asked questions. It is encouraged that you seek advice from your GP if there are
specific issues that concern you. If you wish to receive a physical copy of the booklet, feel free to contact us on : 07 3855 9781. Below are the booklets provided by KSN.

  • Kidney facts for you: provides a general overview about Kidney Disease
  • All About You – Chronic Kidney Disease: Outline risk factors and tips on maintaining your health
  • All About You – High Blood Pressure: Provides information especially for those with high blood pressure

KSN also hold copies of booklets from other health organisation ranging from in depth information about specific Kidney issues to various health management tips and ideas. Some of the key booklets include:

  • Kidney Failure Options: Details the different treatments for patients with Kidney Failure
  • Withdrawing from Dialysis Treatment: Provides answers to frequently asked question concerning treatment withdrawal.
  • Kidney Donation by live donors: For people thinking of becoming live kidney donors.
  • Time to take some health measures?: Contains simple steps you can take to reduce your risk of Chronic disease and maintain a healthier life.

For information or resources, please contact information@ksn.org.au or call 07 3855 9781.

Kidney Donation by Live Donors

ki

IN THIS ISSUE:

Live kidney donation is a gift by choice and not by chance.

It is a gift of normal functioning kidney from one living human being to another.

Live kidney donation is usually charged with lots of emotion. Giving an organ to enhance another person’s life is a momentous event!

Download the brochure.

Polycystic Kidney Disease

poly

IN THIS ISSUE:

Polycystic Kidney Disease (PKD) is quite a common kidney disease in which cysts (fluid filled sacs) are formed in the kidneys.

PKD is a hereditary disease and hence a family disease. It affects both kidneys although one may be affected earlier than the other and/or more than the other.

Download the brochure.

Latest Renal Medical Research

implantable-artificial-kidneyImplantable Artificial Kidney

Nashville, Tennessee USA: Vanderbilt University Medical Center Nephrologist and Associate Professor of Medicine, Dr William H. Fissell IV, is making major progress on a first-of-its kind device to free kidney patients from dialysis.

He is building an Implantable Artificial Kidney with microchip filters and living kidney cells that will be powered by a patient’s own heart.

“We are creating a bio-hybrid device that can mimic a kidney to remove enough waste products, salt and water to keep a patient off dialysis,” said Fissell.

Dr Fissell says the goal is to make it small enough, roughly the size of a soda can, to be implanted inside a patient’s body.

To read more this entire article, please visit the website: http://news.vanderbilt.edu/2016/02/vu-inside-dr-william-fissell%E2%80%99s-artificial-kidney/

New algorithm points the way towards regrowing organs and limbs

mogrifyAn international team of researchers has developed a new algorithm that could one day help scientists reprogram cells to plug any kind of gap in the human body.

The computer code model, called Mogrify, is designed to make the process of creating pluripotent stem cells much quicker and more straightforward than ever before.

A pluripotent stem cell is one that has the potential to become any type of specialised cell in the body: eye tissue, or a neural cell, or cells to build a heart. In theory, that would open up the potential for doctors to regrow limbs, make organs to order, and patch up the human body in all kinds of ways that aren’t currently possible.

To read this entire article, please visit the website: http://www.sciencealert.com/new-algorithm-points-the-way-towards-regrowing-limbs-and-organs/page-2

Medical Equipment

We provide medical equipment to both Members and non-members of KSN. KSN Members however receive a discount on all items and are free of postage and handling fees.

The simplest way to purchase an item is to fill out our online order form. We will contact you to confirm availability and discuss payment options. Alternately, please contact us with your order.

Product Members Non-members
pdbelt PD Belt $14 (inc P&H) $20 ($3 P&H)
bpmonitor A&D Blood Pressure Monitor $140 (inc P&H) $160 ($7 P&H)
 optimized-weight Medical Scale $70 (inc P&H) $95 ($10 P&H)
optimized-arm Fistula Arm Protector $40 (inc P&H) $45 ($10 P&H)
optimized-exercisestrp Exercise Strap $15 (inc P&H) $20 ($5 P&H)

Inspiring Stories

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